oh my. this has been a hellish week. i feel like i've gone from the frying pan into the fire. our son buck (who is t1 diabetic) was vomiting all last week and they finally figured out that he needed to be in hospital. they didn't know what was wrong, but knew it wasn't right. fast forward - ruptured appendix and abscess removed and the recovery has been 1 step forward 2 steps back all week.
poor kid. it's excruciating to watch your 10 year old son have to endure this kind of pain, confusion and prodding. the medical care has been outstanding and he has a dozen of doctors on his staff. he's been in picu the whole time and the nurses have come to adore him. but somehow in the big important things happening to him they weren't understanding that he hadn't been getting real nutrition for the past couple of weeks - and so his body is literally breaking down. they put in a pic line yesterday and have started him on tpn - the most basic form w/out the fat so that he can slowly build back up what has been lost. how does a child in north america become malnourished? it doesn't make any sense. and please this is not socialized medicine - his care is stellar - it's just that surgeons have been so concerned that the infection in his gut would rear it's head and they would have to operate again that keeping him off of food was important because his bowel isn't working.
so he literally has 4 iv lines running into him and he's retaining so much fluid - it's horrible to watch this vibrant young boy trapped inside this body that isn't working. i hate this.
liam took two days off so that he could man the post as he heard in my voice that i was running so thin. i got my period yesterday and knew that i couldn't break down in front of buck so that i wouldn't scare him. i didn't want to leave his side, but knew that if i didn't care for myself i wouldn't be able to care for him. liam walked me to the car and as i got in i realized all of the picu noise, alarms and buzz was gone and i was truly alone. that is usually a good thing, but i have had so much head time lately - too much thinking and not enough processing - that i realized i needed some input. i turned on our 21 year old stereo and tried to find a station. i haven't turned on a radio in over 7 years. i really love silence and my thoughts, but knew that this wasn't the time for it. i was exhausted and needed to be alert for the next 90 minutes.
i found a dreamy enya like song and thought 'okay, this will work', paid for my parking and headed home. by the time i hit the highway the old stevie nicks song landslide was playing - i haven't listened to the radio in 7 years and THIS is the song that comes on the radio? i started to keen. i could barely see through my tears to pay the bridge toll and stay on the road. the next song was luba's "every time i see your picture i cry" and i began to scream "YOU CAN'T HAVE HIM" over and over at the top of my lungs.
i am flat out cracked open and have no place safe to hide any more. this has stripped me bare to my core and everything feels like it's on the line.
i am home, drinking my own fair trade scandanavian blend with my wonderful daughter on the computer next to me - we have been given the blessing of a snow day and will be spending it together some how. we both need this, and so i needed to get this off my chest this a.m. so that i could be present for her and not terrify her with the depth of my deep emotions.
please pray. i can't seem to find god in this. that is my prayer. (other than heal him NOW) - that we would all see the places that god is with us in this moment. to know that he has not abandoned us to our pain and fear. we have all been face to face with our deepest fear this week and it is horrible. i want to be face to face with god in this fear and i can't seem to find him.