hope at a song not scored for breathing linked to a website i wasn't familiar with. it's called 'but you don't look sick'. she highlighted a story about a woman with lupus trying to explain to her best friend what it was like to live with a life long disease.
my mother (the real bobbie) had lupus and died (at 43) 17 years ago on february 6th. i've been thinking about her quite a bit lately. this story has helped me be much more sympathetic in my memories of her. if you are sick, or have friends with life-long sickness this story is brilliant in helping those of us not struggling with our health to better understand those who are. it's a metaphor using the idea of spoons.